DSAW Fox Cities

Comedy Event!

2011-10-19T09:22:00.000-05:00

Comedy Event Benefiting

Down Syndrome Association of WI -

Fox Cities

Thursday, October 27th
Seating Begins at 6:30 pm

Comedy Quarter

1575 Plaza Drive, Neenah

Click HERE for directions

Enjoy a night out and support Down syndrome awareness!

This event is not only for DSAW-Fox Cities families.

Tell your relatives, friends and neighbors who may be looking for a way to support Down syndrome for Down syndrome awareness month or may just be in need of a fun night out! Feel free to forward this email on to others!

Tickets should be purchased in advance online by clicking on the link below or simply visiting www.comedyquarter.com. Show features Spanky Brown and is rated PG-18. Visit website for additional details.

Buy Tickets Now!

100% of the proceeds from ticket sales benefit DSAW-Fox Cities!

Walk Recap

2011-10-08T10:43:00.002-05:00

Walk Recap

Our 2nd Annual Down Syndrome Awareness Walk was a HUGE success!

We welcomed 1200 walkers and raised just over $62,000!

120 people also attended our Friday Night Kick-off!

Thank you to all of you who attended, raised funds and/or volunteered! The event would not have been possible without the help of over 75 volunteers and all of you who volunteered your time over the past year!

Watch for more details and pictures from the walk coming soon!

October Events

2011-10-08T10:42:00.002-05:00

Upcoming Events

Saturday, October 8th: 2nd Saturday Family Gathering, Ladybug Bistro, 119 E. College Ave. Downtown Appleton, 10am-12pm, South side of College Avenue metered parking or parking in rear.

Tuesday, October 10th: DADS night out, 6:30pm, Coaches Corner, N140 Eisenhower Dr, Appleton. (Not just for Dads, but for any Men who support a person with Down syndrome)

TBD: DSAW-Fox Cities Advisory Committee Meeting, 7:30pm-9pm, Living Vine Community Church, 402 N. Commercial St., Neenah

Thursday, October 27th: Comedy Night Benefiting DSAW-Fox Cities, Seating begins at 6:30pm/Show Starts at 7:30pm, Comedy Quarter, Neenah, 100% of the proceeds benefit DSAW-FC, Tickets should be purchased online in advance, Click on the following link to reserve your tickets today! http://www.ticketbiscuit.com/comedyquarter/EventPage.aspx?EID=106053

Friday, October 28th: 4th Friday Playdate, 9-11am, Anna Munn's home, 625 S. Joseph St., Appleton (920)-410-1224

DSAW-Fox Cities will be hosting a room at the 2nd AnnualGreat Country Pumpkin Party at the Country Inn & Suites, A Halloween Party for Children with Specials Needs and their Families!

Thursday, October 27th

4:30-6:30pm

355 Fox River Drive

Appleton, WI 54913

Yoga Classes for children with Down syndrome

Parent/child Yoga class 11-11:30am

Parent/baby Yoga class 11:30-noon

Location: Lower Level of Ladybug Bistro, 119 E. College Ave. Appleton

Every Saturday

Woodbine House Sale

2011-09-06T07:25:00.000-05:00

September & October 2011

Special Sale -- 20% off all of

our books and DVDs on

Down syndrome

www.woodbinehouse.com

In recognition of National Down Syndrome Awareness Month, we're offering 20% off all Down syndrome books and DVDs.

September Events

2011-09-01T15:00:00.001-05:00

Upcoming Events

Sat. Sept. 10th- 2nd Saturday Family Gathering, 9:30-11:30am, Derks Park, Appleton, Debbie Merkel will be bringing ice cream treats for Aaron's 4th birthday so please RSVP to Debbie .

Tues. Sept. 13th- Dad's Night Out, 6:30pm at Coaches Corner, N140 Eisenhower Drive, Appleton (This event is not just for Dads! Grandpas, Uncles, Brothers or any men who support someone with Down syndrome.)

No DSAW-FC Advisory Committee Meeting or Advocacy Meeting in September.

Fri. Sept. 23rd- 4th Friday Playdate, 9:00-11:00am, Jeff Brownell's home; RSVP (and for directions), email Jeff.

Friday, September 30th

Friday Night Kickoff!

"Dwell in the Possibilities"

Perry Hall, UW-Fox Valley

Doors Open @ 6:30pm

Presentations start @ 7:00pm

Saturday, October 1st

2nd Annual Fox Cities Down Syndrome Awareness Walk

Riverside Park, Neenah

10:30am

The 2nd Annual Fox Cities Down Syndrome Awareness Walk is ONLY 4 weeks away!!

Right now there are 26 teams, 285 people registered and just over $7,500 raised through pledges alone! Last year, we welcomed 991 walkers and we expect to exceed that amount this year!

The 2011 Fox Cities Down Syndrome Awareness Walk is accepting online registration until noon on Wednesday, September 28th! On-site registration is accepted, but t-shirts are not guaranteed.

Walk Webpage: www.dsawfoxcities.org/walk

Keep up with walk updates or ask questions about the walk at our new Walk Facebook Page!

Brochures are available by mail. Email Melanie atmelbaeten@hotmail.com to have one mailed to you!

Friday Night Kick-off!

Friday, September 30th

Perry Hall, UW-Fox Valley, Menasha

Doors Open at 6:30pm

Presentations start at 7:00pm
"Dwell in the Possibilities"

This event is FREE and open to the public.

This event features a dance performance by Marcia's School of Dance, LLC/ARC Fox Cities as well as keynote presentations by Self-Advocate, Bridget Brown and Co-founder of Signing Time, Rachel Coleman.

Bridget Brown is a successful young woman who captures the attention of everyone she meets with her vitality and confidence. Bridget redefines the term "inclusion" by being the first person with Down Syndrome to be included in her school district. She graduated in 2005 as a result of this very successful school experience. She is a national public speaker and shares tools and strategies she used to be successfully included. She also is a person centered planning coach and works with young adults with disabilities to help them find their own voice.

Rachel Coleman delivers an inspiring and heart felt presentation about raising two daughters with disabilities and also shares how Signing Time was created.

This event is NOT just for parents of children with disabilities! Teachers, therapist, friends and relatives will be inspired to "Dwell in the Possibilities"!

RSVPs are appreciated but not required. Email melbaeten@hotmail.com if you plan to attend.

SPARKS Mini-Grants

2011-08-23T12:44:00.003-05:00

The Wisconsin Board for People with Developmental Disabilities is announcing its call for SPARKS Grants, designed to “SPARK” innovative methods of building community capacity in the areas of grassroots community organizing, Integrated Employment, and self-directed supports. The innovative methods SPARKS Grants ignite are intended to lead to systems change that improves the lives of people with disabilities.

Grant recipients will guide a project that addresses at least one of the areas mentioned above. Grants of between $500 and $3,000 will be awarded on the basis of creative, effective strategies that are likely to result in systems change that will improve the lives of people with disabilities. The deadline to apply for a SPARKS Grant is 4:00 p.m. on Friday, September 16, 2011.

For more information, visit their website at wi-bpdd.org

Woodbine House Sale

2011-08-23T09:50:00.000-05:00

Woodbine House has all their Down syndrome related books on sale for back to school -- 20% off!

Included in the sale is Terri Couwenhoven's new book (due out in December) "The Girls' Guide to Growing Up"

August Events

2011-08-02T15:04:00.000-05:00

Tues. August 9th - Dad's Night Out, 6:30pm at Coaches Corner, N140 Eisenhower Drive, Appleton (This event is not just for Dads! Grandpas, Uncles, Brothers or any men who support someone with Down syndrome.)

Sat. August 13th - *2nd Saturday Family Gathering, 9:30am-11:30am at Derks Park, Appleton

Tues. August 16th - Advisory Committee Meeting, 7:30pm following the Walk Committee Meeting at the Elks Lodge, 1103 West College Avenue, Appleton (If you have ideas to present to the Advisory Committee, please contact Maria )

No August Advocacy Meeting

Mon. August 22nd - Mom's Night Out, 6:00pm, Confucius Chinese Restaurant, 2230 E Northland Ave., Appleton in front of Super Bowl. (This event is not just for Moms! Grandmas, Aunts, Sisters or any women who support someone with Down syndrome.) RSVP to Michelle

Fri. August 26th - *4th Friday Summer Park Playdate in Michelle Zoromski's Backyard. 9-11am, RSVP to Michelle (please email if you need directions)

*Outdoor gatherings are cancelled if it rains.

Walk News!

2011-06-30T14:11:00.003-05:00

Awareness Walk: Online Registration OPEN!

The 2011 Fox Cities Down Syndrome Awareness Walk is accepting online registration!

Walk Webpage: www.dsawfoxcities.org

Keep up with walk updates or ask questions about the walk at our new Walk Facebook Page!

July Events

2011-06-30T12:18:00.000-05:00

Fri. July 8th- Mom's Night Out, Good Company, 110 North Richmond Street in Appleton, 6:00 pm, RSVP to Michelle at mzoromski@gmail.com

Sat. July 9th- 2nd Saturday Family Gathering, 9:00am-11:00am at Derks Park, Appleton

Tues. July 12th- Dad's Night Out, 6:30pm at the Stone Yard, W3010 Edgewood Trail, Appleton

Tues. July 19th- Advisory Committee Meeting, 7:30pm following the Walk Committee Meeting at the Elks Lodge, 1103 West College Avenue, Appleton (If you have ideas to present to the Advisory Committee, please contact Maria at maria@dsawfoxcities.org)

Thur. July 21st- Advocacy Meeting, 6:00pm Appleton Public Library (lower level), Guest Speaker: Harriet Redman, Executive Director of the the Fox Valley Sibling Support Network.

Fri. July 22nd- *4th Friday Summer Park Playdate in Michelle Zoromski's Backyard. 9-11am, RSVP to Michelle at mzoromski@gmail.com (and please ask if you need directions!)

*Outdoor gatherings are cancelled if it rains.

June Events

2011-06-01T12:22:00.000-05:00

Upcoming Events

Sun. June 5th- Mom's Night Out at the El Jiripeo Mexican Restaurant (next to Payless, near Wal-Mart on Calumet -- it's a new restaurant in that building, where the other Mexican restaurant was) 6:00 pm, RSVP to Michelle

Sat. June 11th- *2nd Saturday Family Gathering, 9:00am-11:00am at Derks Park, Appleton

please note the change of location from the Mom & Pop Place to the park!

Tues. June 14th- D.A.D.S. Meeting, 6:30pm at Stone Toad Bar & Grill, South Oneida St, Menasha, between Hwy 441 and Hwy 114. RSVP to Jeff Brownell, jeffDADS@new.rr.com

Tues. June 21st- Advisory Committee Meeting, 7:30pm following the Walk Committee Meeting at the Appleton Public Library, Meeting Room on Lower Level (If you have ideas to present to the Advisory Committee, please contact Maria)

Fri. June 24th- *4th Friday Summer Park Playdate in Sara Pingel's Backyard; 9:00am

*Both outdoor playdates are cancelled if it rains.

May Events

2011-05-15T16:20:00.002-05:00

Mon. May 2nd- Mom's Night Out at the Wild Truffle in Appleton, 5120 W. Michaels Drive, 6:00 pm -- Celebrating Mom's for Mother's Day! RSVP to Michelle at mzoromski@gmail.com

Tues. May 10th- DADS-Fox Cities monthly meeting, 6:30pm, Stone Toad Bar & Grill, South Oneida St, Menasha, between Hwy 441 and Hwy 114. RSVP to Jeff Brownell , jeffDADS@new.rr.com

Sat. May 14th-2^nd Saturday Family Gathering, 10-12 noon, Mom & Pop Place, Neenah. Please RSVP to Maria Steenepoorte by May 12th, maria@dsawfoxcities.org

Tues. May 17th- Advisory Committee Meeting, 7:30pm following the Walk Committee Meeting at the Appleton Public Library, Meeting Room on Lower Level (If you have ideas to present to the Advisory Committee, please contact Maria atmaria@dsawfoxcities.org)

April Events

2011-04-07T17:47:00.000-05:00

Mark your calendar for these upcoming events! We hope you can join us!

Upcoming Events for April:

Tues. April 12th - DADS-Fox Cities monthly meeting, 6:30pm, Stone Toad Bar & Grill, South Oneida St, Menasha, between Hwy 441 and Hwy 114. RSVP to Jeff Brownell, jeffDADS@new.rr.com

Sat. April 9th - 2^nd Saturday Gathering, 10-12 noon, Mom & Pop Place, Neenah. RSVP to Maria Steenepoorte maria@dsawfoxcities.org

** The Gigi's Playhouse workshop on April 9th has been canceled **

We will keep you informed when we are able to reschedule!

Tues. April 19th - Advisory Committee Meeting, 7:30pm following the Walk Committee Meeting at the Appleton Public Library, Meeting Room D (Lower Level)

Thurs. April 28 - Down Syndrome Advocacy, Support and Networking - 6:30pm at the Appleton Public Library, Meeting Room A/B (Lower Level)
TOPIC: There will be a panel of parents of teens and adults with Down syndrome who will speak to our group.

** There will not be a Mom's Night Out in April ** but there will be one on Monday, May 2nd at 6pm at the Wild Truffle in Appleton,5120 W. Michaels Drive -- Celebrating Mom's for Mother's Day! RSVP to Michelle.

3-21

2011-03-21T00:42:00.002-05:00

Happy World Down Syndrome Day!

Woodbine House Sale

2011-03-18T13:39:00.000-05:00

MARCH 21 only!!

Online Sale -- 25% off for

World Down Syndrome Day

www.woodbinehouse.com

In recognition of World Down Syndrome Day, Woodbine House is offering an online sale of 25% off 40 products on Down syndrome and related issues. The sale lasts for just the one day-- March 21, 2011, so be sure to order online on Monday from www.woodbinehouse.com

Arc Presentation - IEP: Process and Product

2011-03-14T15:19:00.000-05:00

IEP: Process and Product

March 17, 2011

6:30pm - 8:00pm

Prince of Peace Lutheran Church

2330 E. Calumet St, Appleton

(near East High School)

presented by:

Gina Villa-Grimsby, FACETS

Gina served as a long time volunteer parent leader for WI FACETS before assuming her position as Parent Information Zone Specialist at WI FACETS. She has B.A. degrees in Political Science and Spanish, with a minor in Women’s Studies and also has her Masters degree in Divinity.

She lived in Spain for 15 years, so is bilingual in Spanish at a native level. She worked as a Case Manager for a federal Child Abuse Prevention Respite Care program at La Causa, Milwaukee; for UW-Marinette as Program Director for their foreign exchange program; and most recently for CESA 8 as a distance learning network Spanish Teacher. Gina is the parent of a teenage son with autism.

Please Register by March 16, 2010 to: Lisa Murphy (920) 725-0943

Visit the Arc at their website: www.arcfoxcities.com

Child care is available upon request. To register for childcare, you must register March 10th. In the event that child care must be cancelled, please call The Arc by March 16th.

Open to all interested individuals, including parents, guardians, advocates, and school/agency personnel. If you have specific questions for our presenters, please let us know when you register.

March Events

2011-03-07T09:02:00.003-06:00

Mark your calendar for these upcoming events! We hope you can join us - these events are fun and informal, and your entire family is invited to attend!

Upcoming Events for March:

Tues. March 8th - DADS-Fox Cities monthly meeting, 6:30pm, Stone Toad Bar & Grill, South Oneida St, Menasha, between Hwy 441 and Hwy 114. RSVP to Jeff Brownell, jeffDADS@new.rr.com

Sat. March 12th - 2^nd Saturday Gathering, 10-12 noon, Mom & Pop Place, Neenah. RSVP to Maria Steenepoorte maria@dsawfoxcities.org

Tues. March 15th - Advisory Committee Meeting, 7:30pm following the Walk Committee Meeting at the Appleton Public Library, Meeting Room D (Lower Level)

Mon. March 21st- World Down Syndrome Day Celebration, 6-8pm, Wild Air, Appleton. RSVP to Michelle Zoromski at mzoromski@gmail.com.

Sun. March 27th- Mom's Night Out, 6pm, Olive Garden 1275 N. Casaloma Appleton, Please RSVP to Michelle at mzoromski@gmail.com

Thurs. March 31st - Down Syndrome Advocacy, Support and Networking - CANCELED

Did You Know? Now You Know! Seminar

2011-03-07T08:06:00.000-06:00

Did You Know? Now You Know!

Training for parents, grandparents, caregivers and providers on health care and community services and supports for children and youth with special health care needs and/or disabilities.

Meet other families and become informed and empowered to get the services and supports your child needs!

When

April 13 and May 2, 5:30 - 8:30 pm

Registration and dinner start at 5:00

Where

Fox Valley Technical College, Oshkosh - Riverside Campus

(room 133C)

How do I register?

Contact the Northeast Regional Center for Children and

Youth with Special Health Care Needs at 877-568-5205 or

email Kara at KVanVooren (at) chw.org.

The training is free and dinner is provided.

This training is sponsored by Family Voices of Wisconsin, Arc Winnebago County Disability Association and the Northeast Regional Center for Children and Youth with Special Health Care Needs.

Sign up for one or both sessions!

April 13 - Session 1

Public Support Systems Available to Assist You and Your Child - Participants will learn about agencies that can provide services and supports for your family and what to do when services are not immediately available.

More About Medicaid - Participants will learn more about Medicaid benefits and how to get what you need for your child. We will discuss waivers, HealthCheck and Medicaid card services as well as prior authorizations and denials.

May 2 - Session 2

Parents & Partners on a Journey - We will talk about the journey of having a child with special health care needs and/or disabilities. Participants will learn about partners to help along the way.

Advocating for Systems Change - Participants will learn how to become an effective advocate and what happens when parents become involved in systems change. We will talk about opportunities to get involved and tools for how to advocate at different levels.

Certificate of training participation will be available for individuals seeking continuing education credit.

This training is funded in part by the Children and Youth with Special Health Care Needs Program, within the
Wisconsin Department of Health Services, Division of Public Health, which is supported with funding from the
Maternal and Child Health Title V Services Block Grant, Maternal and Child Health Bureau, Health Resources and Services Administration, U.S. Department of Health and Human Services.

03.02.11

2011-03-02T10:26:00.000-06:00

To learn more, CLICK

Family Voices Parent Leadership Institute

2011-02-08T10:36:00.000-06:00

YOU ARE INVITED! Family Voices Parent Leadership Institute - March 30-31

Family Voices of Wisconsin, in collaboration with Disability Rights Wisconsin, the Survival Coalition,

Wisconsin Board for People with Developmental Disabilities, Wisconsin Family Ties and Wisconsin FACETS,

invites you to apply for Advocacy for Change: Parent Leadership Institute

Advocacy for Change is a learning and action forum for parents or other family members across Wisconsin to gain new information and skills that will enhance their efforts to improve the lives of children and young adults with disabilities and/or special health care needs. Activities include meeting with your State Representatives.

March 30 and 31, 2011

Concourse Hotel, Madison, WI

There is no cost to participate. Registration, materials, lodging and meals will be covered by the sponsoring organizations.

ACT NOW! Deadline to apply is Feb. 23^rd. Participants will be notified by March 1 of their acceptance.

Go online for an application and event information - www.fvofwi.org/advocacy-2011.html or

contact Lynn R ( Lynn@fvofwi.org ) or Barbara K (barb@fvofwi.org) or for details.

World Down Syndrome Day Celebration!

2011-01-31T22:14:00.000-06:00

Come party with your friends at DSAW- Fox Cities for World Down Syndrome Day!

Monday, March 21, 2011

6:00-8:00 pm

Wild Air

W3223 Springfield Dr, Appleton, WI

This is a FREE member event - DSAW-FC will pay admission fees.

We have the entire place reserved for our group! Since this is a private group event, they will not be serving pizza/meals as they normally do -- but we will have snacks & dessert! If you'd like to sign up to be a snack, please let Michelle know when you RSVP.

PLEASE RSVP to Michelle - michelle@zoromski.com with the number of adults & children who will be attending.

* Please be sure everyone (children & adults) wears socks.

February Events

2011-01-16T12:56:00.002-06:00

Mark your calendar for these upcoming events! We hope you can join us - these events are fun and informal, and your entire family is invited to attend!

Upcoming Events for February:

2nd Saturday Gathering at Mom & Pop Place:

Saturday, February 12, 10:00 AM -12:00 Noon - a family-friendly cafe; The Mom & Pop Place is located at 117 W. Wisconsin, downtown Neenah

Mom's Night Out *** NEW LOCATION! ***

Sunday, February 20, 6:00pm; Sergio's Mexican Restaurant in Appleton; RSVP to Michelle

ARC Presentation - Behavioral Interventions

2011-01-04T07:07:00.000-06:00

Behavioral Interventions

Jan 20, 2011

6:30pm - 8:00pm

Prince of Peace Lutheran Church

2330 E. Calumet St, Appleton

(near East High School)

presented by:

Joan Helbing

Joan Helbing is a special education diagnostician, program support teacher, and educational consultant with the Appleton Area School District in Wisconsin. She has been a special education classroom teacher and support person for 33 years in the areas of learning, cognitive, emotional/behavioral disabilities and autism. She has worked with individuals with exceptional educational needs from ages 3 to adult. She is the coordinator for Appleton Area CHADD and a past member of the National CHADD Board of Directors. Joan also serves as President of the NAMI (National Alliance on Mental Illness) Fox Valley BOD. Joan is a parent and teacher trainer in the area of supporting children and adolescents with special needs.

Upon registering, please take advantage of the opportunity to leave a question for the presenter.

Please Register by Jan 19, 2010 to: Lisa Murphy (920) 725-0943

Visit the Arc at their website: www.arcfoxcities.com

Child care is available upon request. To register for childcare, you must register by Jan 13th. In the event that child care must be cancelled, please call The Arc by Jan 19th.

Future is Now!

2010-12-28T08:42:00.001-06:00

ARE YOU READY TO DECLARE "NO MORE PROCRASINATING"?

because the

Future is Now!

for adults concerned about the future of their siblings with disabilities

SERIES BEGINS

JANUARY 13, 2011 6:30-8:30 PM

THOMPSON COMMUNITY CENTER, 820 W. COLLEGE AVE. - APPLETON

Future is Now! is a 5-session series of practical help and information for brothers and sisters of people with disabilities. Each session is tailored to address the needs of the participants around these topics:

Session #1 - The Big Step - Getting started is the most important step and starts by identifying the dreams and fears for the future. You'll not only learn about the Letter of Intent and its role as a tool in future planning, but also start to build a network of support that will be critical to your success and peace of mind.

Session #2 - Building Relationships and Skills - Participating in community activities and making friends is important to the quality of life. This session will focus on strengthening and expanding friendships and community support for your sibling..

Session #3 - Housing - What's important in finding the housing solution for your sibling? How can it be funded? What are the options for housing?

Session #4 - Work, Retirement and Leisure - This session focuses on the world of work, vocation or day-services to support people with disabilities.

Session #5 - Who will be the "Keeper of the Dream"? Finally, who are your preferences for successor caregivers and what safeguards do you want in place to ensure your future plan will be implemented?

Future Planning is Important

Planning for the future is an important task for any adult as they grow older and life changes. But for those who have developmental disabilities or long-term illnesses, it is even more important.

Without adequate plans in place, adults with disabilities often face disruptive transitions when families can no longer provide care, endure emergency placements in inappropriate settings and suffer through inadequate financial and legal safeguards, all of which place a strain on siblings and other relatives.

Future is Now! has one main goal

The main goal is to help siblings and other family members complete a Letter of Intent. When all 5 sessions have been completed, participants will have a written document which describes their sibling's desired future living arrangement, community role, and lifestyle preferences. The Letter of Intent is a written plan that includes practical directions and information for maintaining continuity in their sibling's daily life and needed supports to achieve these outcomes. Some call this peace of mind.

Each Future is Now! session is a combination of group activities, discussion, videos, and local area experts with information on relevant issues dealing with financial, legal, housing, health, work and retirement, relationships and leisure.

But if you expect sessions to be all work and no fun...you might be surprised at all the laughter. Planning is more fun with others who understand.
.
Series includes five sessions tailored to the needs of the participants at a very reasonable price

Each session is 2 -2 1/2 hours and includes a variety of activities, including videos, local area experts with information on relevant topics, large and small group discussions. Sessions are facilitated by FVSSN and Arc Fox Cities staff, along with siblings who have completed the Future is Now! series.

Each participant receives materials the will help participants and their family members collect information between sessions, discuss important issues and successfully move through the planning process to save you time and money and reach your goals.

To help cover costs, the Future is Now! Series participants pay a one-time enrollment fee of $100 per family (regardless of how many attend with you.) Participants may return to as many Future is Now! sessions offered by the Fox Valley Sibling Support Network as they wish at no additional charge. Session #1 is free and there is no obligation to return to future sessions.

For more information, visit www.fvssn.org or call 920-968-1742.

Start the New Year with a plan

If you have been putting off tackling issues that are necessary to help secure a future plan for your sibling with disabilities, sign up now for Future is Now! Not only will you get important information from local resources, but you'll meet other siblings who have worked on plans and others who can share their experiences. In the end, you gain knowledge and support to move forward.

About Fox Valley Sibling Support Network

The Fox Valley Sibling Support Network (FVSSN) is a non-profit 501 c3 organization offering peer support and educational programs for children and adults who have siblings with special needs or long-term illnesses. More information is available at www.fvssn.org or call 920-968-1742.

January Events

2010-12-23T22:51:00.001-06:00

Mark your calendar for these upcoming events! We hope you can join us - these events are fun and informal, and your entire family is invited to attend!

Upcoming Events for January:

Mom's Night Out

Wednesday, January 5, 6:30pm; Sai Ram Indian Restaurant in Appleton; RSVP to Michelle

2nd Saturday Gathering at Mom & Pop Place:

Saturday, January 8, 10:00 AM -12:00 Noon - a family-friendly cafe; The Mom & Pop Place is located at 117 W. Wisconsin, downtown Neenah

Successful IEP Roadmap Reviews

2010-12-20T22:43:00.005-06:00

DSAW-Fox Cities is pleased to host

"Successful IEP Roadmap Reviews"

where school challenges are introduced and attendees will learn about legalities and strategies others have successfully used to address the most common issues.

Presented by Ron Malloy

DSAW Executive Director &

Father to Alexis, age 20 with Down syndrome

Saturday, January 29, 2011

Appleton Public Library, Meeting Room C
No fee to attend

9:30am Registration and Continental Breakfast
10:00am-12:00pm Session 1-Birth to 12
Lunch (optional) - $7 / person (please let Jen know in advance if you'd like lunch)
1:00pm-3:00pm Session 2 - Ages 13-21 (transition age)

Individually scheduled “One on one” Roadmap Discussions are available. Ron is happy to stay late on Saturday and into Sunday based on demand

Please call: (414) 327-3729 to schedule.

To ensure adequate seating and food, kindly RSVP at brownellj@wwdb.org.

Prevalence of Down Syndrome

2010-12-08T12:13:00.000-06:00

The Centers for Disease Control and Prevention (CDC) and the National Birth Defects Prevention Network have published a study that updates national statistics regarding the prevalence of Down syndrome in the U.S. Click here to read more about the study.

The study indicates that there are about 6,000 diagnoses of Down syndrome each year in the United States. One in every 691 babies is born with Down syndrome. This is an increase from the previously reported statistic of 1 in every 733.

Based on the new study, the National Down Syndrome Society (NDSS) will cite the new prevalence estimates on its website and other materials. Click here to read the official position paper.

Rosa's Law

2010-11-25T12:31:00.000-06:00

Obama signs "Rosa's Law;" "mental retardation" out, "intellectual disability" in

President Obama signed a law on October 5, 2010, mandating Federal statutes will no longer use the term "mental retardation;" the replacement phrase is "intellectual disability.

(Take from Chicago Sun-Times)

Registration notification: 2011 Lose The Training Wheels camp

2010-11-22T07:35:00.000-06:00

DSAW-Fox Cities will be offering grants for individuals with Down syndrome to attend the 2011 Lose the Training Wheels camp, co-sponsored by DSAW and held in Milwaukee. See the DSAW website for details on last year’s Lose the Training Wheels camp.

DSAW-Fox Cities serves families on our database that live in the counties of Outagamie, Winnebago, and Calumet. Families on our database who live in other counties will be considered on a case-by-case basis.

DSAW is keeping track of those that are interested in receiving notification of when registration is open for the 2011 camp so they can be aware of the demand. Last year, registration filled up within 2 weeks. Camp dates and other details have yet to be announced, but if you are interested in receiving registration notification, please let Maria know your contact information (or leave a comment here) which we will forward to DSAW.

ARC Presentation - Guardianship

2010-11-12T08:55:00.001-06:00

Nov 18, 2010

6:30 pm—8:00 pm

Prince of Peace Lutheran Church

2330 E. Calumet St, Appleton

(near East High School)

presented by

Jim Sullivan - Guardian Administrator – The Arc Fox Cities

Jim Sullivan has been the Guardianship Administrator for the ARC Fox Cities since April, 2007. He sees to the personal and financial welfare of 38 individuals whom the courts have found not able to adequately care for themselves or make the decisions necessary to keep themselves safe personally and financially.

Mr. Sullivan has been a legal guardian since 1991 when he took on his first ward while he worked as a unit manager at what is now Brewster Village, Outagamie County’s long term care facility. He spent 14 years working for the County. Prior to that, he worked as a chemical dependency counselor and was one of the very first certified alcoholism counselors in the state.

Open to all interested individuals, including parents, guardians, advocates, and school/agency personnel. If you have specific questions for our presenter, please let us know when you register.

Please Register by Nov 17, 2010 to: Lisa Murphy (920) 725-0943 X 111

Visit the Arc at their website: www.arcfoxcities.com

Child care is available upon request. To register for childcare, you must register by Nov 11. In the event that child care must be cancelled, please call The Arc by Nov 17.

December Events

2010-11-11T19:15:00.000-06:00

Mark your calendar for these upcoming events! We hope you can join us - these events are fun and informal, and your entire family is invited to attend!

Upcoming Events for December:

Mom's Night Out

Wednesday, December 8, 6:00pm; Good Company in Appleton; RSVP to Michelle

2nd Saturday Gathering at Mom & Pop Place:

Saturday, December 11, 10:00 AM -12:00 Noon - a family-friendly cafe; The Mom & Pop Place is located at 117 W. Wisconsin, downtown Neenah

November Events

2010-11-09T07:34:00.000-06:00

Mark your calendar for these upcoming events! We hope you can join us - these events are fun and informal, and your entire family is invited to attend!

Upcoming Events for November:

Mom's Night Out

Wednesday, November 10, 6:00pm; Sai Ram Indian Restaurant; RSVP to Michelle

2nd Saturday Gathering at Mom & Pop Place:

Saturday, November 13, 10:00 AM -12:00 Noon - a family-friendly cafe; The Mom & Pop Place is located at 117 W. Wisconsin, downtown Neenah

2010 Down Syndrome Awareness Walk Video

2010-10-27T23:26:00.000-05:00

Thanks to Melanie for putting together this video!

Make an on-line slide show at www.OneTrueMedia.com

Madison - DS Art

2010-10-22T07:39:00.000-05:00

A family (who will be joining our DS family through international adoption soon) was in Madison to complete some adoption paperwork recently.

At the Capitol building, they took a tour and discovered this artwork on display:

This beautiful glass etching is titled, "Reaching for the Stars"

This sign explains that this glass etching was created for the Madison Area Down Syndrome Society and has been on display for DS Awareness Month!

If you'll be in Madison before November 3, this would be a great time to tour the Capital!

And if you're interested in following my friend's adoption, she has been blogging their journey.

Baby Signing Time

2010-10-18T07:56:00.000-05:00

The Signing Time DVD series is so popular with our group, I wanted to share: recently, it was noticed that the Baby Signing Time DVDs are available at the Appleton library as well! They have multiple copies, as well.

There are 4 titles available in the Baby Signing Time series, which is geared for children age 3 mos to 3 years, and are very music heavy. As always, if you have a library card, you can reserve items & then go pick them up.

TOP Soccer

2010-10-18T07:35:00.002-05:00

Top Soccer stands for The Outreach Program of Soccer, which is available for children 6-16 years old that have special needs. Each special needs player is assigned a buddy who encourages, supports, and participates with the child with special needs. The league plays for a total of 18 weeks over the course of the school year, with three six-week sessions running Sept.-Oct., Jan.-Feb., and April-May. Games are played from 10-11am on Saturday mornings, indoors at Janssen Elementary in Combined Locks. $15 per player. Hosted by the Kimberly Area Soccer Association, Inc. but open to all Fox Valley youth, contact Wayne Stoflet at 920-788-5840 for more information.

Arc Presentation - Your Dependent with Special Needs. Making His or Her Future More Secure

2010-10-13T22:25:00.000-05:00

OCT. 21, 2010

6:30 pm—8:00 pm

Prince of Peace Lutheran Church

2330 E. Calumet St, Appleton

(near East High School)

presented by

Ken Wirtz, Financial Services Executive/MetLife Center for Special Needs Planning

Do you worry that your child with a disability is receiving all their benefits now? Is your child with a disability taken care of for the future? Are you familiar with guardianship, conservatorship and guardianship ad litem?

Please come to this informative session addressing these topics:

Government Benefit Eligibility

Guardianship and Conservatorship/Guardian Ad Litem

Financial Security and Funding Options

Open to all interested individuals, including parents, guardians, advocates, and school/agency personnel. If you have specific questions for our presenters, please let us know when you register.

Please Register by Oct 20, 2010 to: Lisa Murphy (920) 725-0943 X 111

Visit the Arc at their website: www.arcfoxcities.com

Child care is available upon request. To register for childcare, you must register by Oct 14. In the event that child care must be cancelled, please call The Arc by Oct 20th. for Transition (CAT)

New Library Book

2010-10-13T07:07:00.000-05:00

Menasha Public Library now has the new book The guide to good health for teens & adults with Down syndrome by Brian Chicoine & Dennis McGuire, and published by Woodbine House.

Top Teams!

2010-10-12T14:36:00.002-05:00

Congrats to the top fundraisers at the 1st Annual Down Syndrome Walk!

#10 - Jennifer from Noah's Warriors
#9 - Debbie from Team Aaron
#8 - Danielle from Team Julia
#7 - Sandy from Colton's Crew
#6 - Karen from Team Rex
#5 - Sara from Movin' for Max
#4 - Erin from Team Tyler
#3 - Melanie from Team Logan
#2 - Tina from Cruisin for Cameron
#1 - Jeff from Team Montana!

And Movin' for Max won the prize for biggest team with over 70 team members!

Times Square Video

2010-10-10T22:08:00.002-05:00

The 2010 Times Square Video is up!

You can watch in on the NDSS website.

Online Resource

2010-10-07T13:18:00.000-05:00

A new resource is available online for mothers who learn their baby will be born with Down syndrome:

DownSyndromePregnancy.org is a non-profit organization that offers support to expectant parents who have received a prenatal Down syndrome diagnosis and are moving forward with their pregnancy. The material is not appropriate for women who are still weighing options about their pregnancy because it infers that a woman will be continuing a pregnancy to delivery and beyond. More appropriate resources for women weighing options are their medical providers andUnderstanding a Down Syndrome Diagnosisdistributed by Lettercase.org.

Pictures for Parenting.com

2010-10-07T13:15:00.002-05:00

from Parenting.com:

Parenting.com looking for photos of kids with Down syndrome for online photo gallery
http://bit.ly/dCWMz8

...This month we're looking for photos of your child 12 or under with Down Syndrome, in honor of National Down Syndrome Awareness Month in October.

E-mail: scrapbook@parenting.com
Please include your name, your child's name, hometown, state, and a brief description if you'd like.

*Submissions become the property of Bonnier Corp. By submitting a photo, you grant us the perpetual, irrevocable right to use the photo for any purpose in any and all media worldwide.

See all photo galleries in A Special Joy 2008: Babies with Down Syndrome

See all photo galleries in A Special Joy 2009: Kids with Down Syndrome

http://www.parenting.com/article/Baby/Work--Family/Were-looking-for-photos-of-your-baby-with-Down-Syndrome

Signing Time Online

2010-10-07T11:42:00.000-05:00

On the Signing Time website, they have a "Down Syndrome Daily Support Bundle" since October is DS month.

Under the "Details" tab, you'll find a FREE PDF guide :

Using Signing Time with Children who have Down Syndrome - FREE PDF guide
Learn about the benefits of signing with children who have Down syndrome – and get useful tips for signing at home or in the classroom with this FREE 10-page guide (click to download): "Using Signing Time with Children who have Down Syndrome"

October Events - Updated!

2010-10-06T08:09:00.001-05:00

Mark your calendar for these upcoming events! We hope you can join us - these events are fun and informal, and your entire family is invited to attend!

Upcoming Events for October:

1st Annual Down Syndrome Awareness Walk! Please join us! October 2 - details available on our walk website.

2nd Saturday Gathering at Mom & Pop Place:

Saturday, October 9, 10:00 AM -12:00 Noon - a family-friendly cafe
The Mom & Pop Place is located at 117 W. Wisconsin, downtown Neenah

DADS meeting at Stone Toad Bar & Grill

Tuesday, October 12, 6:30pm, Stone Toad Bar & Grill is on South Oneida St, Menasha, between Hwy 441 and Hwy 114. RSVP to Jeff Brownell

Great Pumpkin Party

Thurs. October 28 – Great Country Pumpkin Party, 4-6pm, Country Inn & Suites, 355 Fox River Dr, Appleton. DSAW-Fox Cities will be hosting a room. This is hosted for kids with special needs & their families to trick or treat!

Down Syndrome Advocacy, Support & Networking
cancelled for October

Thank You!

2010-10-05T16:52:00.000-05:00

The 1st Annual Fox Cities Down Syndrome Awareness Walk was a huge success!

991 walkers, 65 volunteers and 18+ vendors were present at the event!

Just over $60,000 was raised for DSAW-Fox Cities!

It was emotional for me to watch families enjoying the day and the being able to connect with others. The day was a dream just two years ago and I can't believe that it came true just a couple of days ago. Two years ago, I dreamed of a way to bring our families and friends together to celebrate what we have in common and to share it with everyone we know. Down syndrome has changed my life in ways that I will forever be thankful for. I think we can all agree that it is now clear that this event was just what the area needed in order to provide us with momentum as we go into the future. Continuing to spread Down syndrome awareness will ensure that our loved ones with Down syndrome will enjoy full acceptance, full access, full life and full potential.

Thank you for your involvement in this year's event! Whether you walked or made a donation, you made a difference for people with Down syndrome and their families!

Save the date - the 2nd Annual Down Syndrome Awareness Walk will be on October 1, 2011, and Rachel Coleman will be returning!

We also had three photographers at the event, and will let you know when pictures are on our website!

Thanks again!

Melanie B,
Fox Cities Down Syndrome Awareness Walk
Event Coordinator

Awareness Items

2010-10-05T16:46:00.000-05:00

Please contact Michelle Z if you're interested in purchasing any of these items (or leave a comment on this post)

Down Syndrome Awareness Ribbon – Car Magnet $5.00

I (heart) Someone with Down syndrome” – Window Cling $1.00

I (heart) Someone with Down syndrome” – Large Round Magnet $5.00

DSAW Awareness Bracelet $1.00

DSAW Baseball Cap (pink or khaki) $10.00

100% of the profits go to the Down Syndrome Association of Wisconsin-Fox Cities

DSAW-FC Book Sale!

2010-10-05T15:24:00.002-05:00

We had some titles for sale at the walk, and we have some left. If you're interested in purchasing a book, please contact Michelle Z (or leave a comment on this post). No additional tax or shipping fees are added, if you live locally.

You would NOT be ordering these books online, these are books we have extra copies of, on hand for our members to purchase.

All Books on Sale to Celebrate Down Syndrome Awareness Month!

My Friend Isabelle

Regular Price: $14.95 Sale Price: $12.00

We’ll Paint the Octopus Red

Regular Price: $15.95 Sale Price: $13.00

Kids Like Me…Learn Colors

Regular Price: $11.95 Sale Price: $10.00

Kids Like Me…Learn ABC’s

Regular Price: $12.95 Sale Price: $11.00

My Up & Down All Around Book

Regular Price: $10.95 Sale Price: $9.00

I Can, Can You?

Regular Price: $10.95 Sale Price: $9.00

Gifts 2

Regular Price: $19.95 Sale Price: $16.00

Gifts

Regular Price: $18.95 Sale Price: $15.00

Hi, I’m Ben! …And I’ve Got a Secret!

Regular Price: $10.00 Sale Price: $8.00

100% of the profits go to the Down Syndrome Association of Wisconsin-Fox Cities

Santa Celebration

2010-10-04T22:40:00.004-05:00

The Fox Valley Sibling Support Network has their annual Santa Celebration on December 4th. You can register now (and I suggest you do, if you're interested in attending - they fill up fast!)

More info can be found on this flyer.

Future is Now!

2010-09-28T06:45:00.000-05:00

Fox Valley Sibling Support

Network Announces

Future is Now! this Fall for Adults

Concerned about Siblings with

Disabilities

Appleton, WI - September 27, 2010 - Adults who have siblings with

disabilities and are interested in their future care are invited to attend

a free orientation session this Sunday, October 3, 2010 from 4-6 pm

at the Atlas Coffee Mill and Cafe, 425 W. Water St, Appleton.

The orientation session will provide details about a program called

Future is Now! presented by the Fox Valley Sibling Support Network.

Future is Now! is a 5-session series of practical help and information

for brothers and sisters of people with disabilities.

Future Planning Important

Planning for the future is an important task for any adult as they

grow older and life changes. But for those who have developmental

disabilities or long-term illnesses, it is even more important.

Without adequate plans in place, adults with disabilities often face

disruptive transitions when families can no longer provide care,

endure emergency placements in inappropriate settings and suffer

through inadequate financial and legal safeguards, all of which place

a strain on siblings and other relatives.

Future is Now! has one main goal

The main goal is to help siblings and other family members complete

a Letter of Intent. When all 5 sessions have been completed,

participants will have a written document which describes their sibling's

desired future living arrangement, community role, and lifestyle preferences.

The Letter of Intent is a written plan that includes practical directions and

information for maintaining continuity in their sibling's daily life and needed

supports to achieve these outcomes. Some call this peace of mind.

Each Future is Now! session is a combination of group activities, discussion,

videos, and local area experts with information on relevant issues dealing

with financial, legal, housing, health, work and retirement, relationships

and leisure.

For more information, visit www.fvssn.org or call 920-968-1742 or click here.

About Fox Valley Sibling Support Network

The Fox Valley Sibling Support Network (FVSSN) is a non-profit 501 c3

organization offering peer support and educational programs for children

and adults who have siblings with special needs or long-term illnesses.

More information is available at www.fvssn.org or call 920-968-1742.

Walk Registration

2010-09-25T15:40:00.000-05:00

Online registration for the walk is now closed - but you can register at the event!

For more details on the First Annual Down Syndrome Walk in the Fox Cities, please visit our walk website. Thank you!

Keynote Presentation - Rachel Coleman

2010-09-24T10:51:00.001-05:00

You are invited to the Keynote Presentation
by Rachel Coleman of Signing Time!

Rachel will speak about raising children with disabilities & the creation of the Signing Time Foundation.

Friday, October 1
6:30pm Doors open / 7:30pm Presentation

$5 per adult for admission & appetizers
Cash bar available
Elks Lodge No. 337; 1103 W College Ave, Appleton

(gray building on south side of College Ave; a couple of blocks west of N Richmond St, across from Family Video; small parking lot, but street parking & parking lot across the street are available)

This will be an adult-only event.

RSVP to Michelle & pay $5 at the door.

Space is limited - you MUST RSVP to attend.

Hosted by Down Syndrome Assoc. of WI-Fox Cities (DSAW-Fox Cities)

Blog: http://www.dsawfoxcities.blogspot.com/

Website: www.dsawfoxcities.org

FirstGiving website: http://www.firstgiving.com/dsawfc

Facebook group: Down Syndrome Association Wisconsin Fox Cities Connection

Rachel Coleman will be performing Signing Time! live at the 1st Annual Fox Cities Down Syndrome Awareness Walk, Saturday, October 2

Register Today!

2010-09-22T14:05:00.002-05:00

Today is the last day to register online for the 1st Annual Down Syndrome Awareness Walk!

The walk is in Neenah on October 2nd - registering online guarantees you a t-shirt and is only $5 per person!

Challenger Football League

2010-09-20T22:31:00.000-05:00

Challenger Football League is sponsored by Fox Valley Pop Warner Football, Inc., and is an opportunity that provides a no-contact, flag football experience for boys and girls ages 6-16 years who have special needs and are unable to participate in other football divisions. Teams are made up of 8-12 players and are individualized to the players needs with parents/buddies assisting as needed.

There is no participation fee; Pop Warner absorbs all the costs. Five games are played beginning in September, and there is still time to participate this year. For additional information, visit www.appletonfootball.org and click on Challenger League.

The next game is at Plamann Park, Sat. Sept. 25, 1pm.

Walk Registration

2010-09-20T13:12:00.002-05:00

Over the weekend (Sept 18-19), our online registration was closed due to a FirstGiving error.
As of 8:00 am this morning, this problem has been fixed and online registration is now back open.
Due to the loss of two pre-registration days, we will extend pre-registration by two days. Participants may now pre-register until midnight on September 22nd.

T-shirts will now be guaranteed for walkers who register by midnight on September 22nd.

We will continue to accept offline registration after September 22nd, but these walkers will not be guaranteed t-shirts.

Entertainment News

2010-09-15T08:53:00.000-05:00

Down syndrome actor is star at Toronto fest - story online.

Brian Skotko in Milwaukee

2010-09-15T07:28:00.001-05:00

From Upside Down in Milwaukee:

Save the date for a special breakfast with Dr. Brian Skotko on Saturday, November 20th at 9am in the community room at Steinhafels in Waukesha at I94 and county Hwy F. Babysitting will be available.

How did you receive the news that your child had Down syndrome? Most of us had a bad experience. Wisconsin Upside Down wants to change that in Wisconsin. Come hear how you can make a difference in the lives of others and why it is important for us all to get educated!

New Prenatal Tests for Down Syndrome:

Everything You Need to Know & Should Be Doing.

Dr. Brian Skotko will describe the latest prenatal tests for Down syndrome in terms that everyone can understand. He will assess the impact of prenatal testing on the number of babies being born with Down syndrome, and he describe ways in which parents can play an active role in ensuring that new and expectant parents receive up-to-date, quality information about Down syndrome.

Our members have told us that this issue is important to them, so we are not only bringing him in to meet parents, he will be spending time on grand rounds at Children’s Hospital of Wisconsin and with residents and local doctors. Too many of us have received the news in a harsh manner with little information and no hope. Our goal is to help medical professionals in Wisconsin learn to provide factual information about Down syndrome in a compassionate way to parents whose children test positive for Down syndrome. We also need your help. If you would like to help sponsor Dr. Skotko’s visit, please call us at 262-443-8690. With your help we can spread the word that Down syndrome is down right beautiful.

Brian Skotko’s biography can can be located at www.brianskotko.com

BrianSkotko, M.D., M.P.P., a clinical fellow in genetics at Children's Hospital Boston, Massachusetts General Hospital, Brigham & Women's Hospital, and Dana Farber Cancer Institute, has dedicated his professional energies toward children with cognitive and development disabilities. He is one of the specialists in the Down Syndrome Program at Children's Hospital Boston. In 2001 he co-authored the nationl award-winning book, Common Threads: Celebrating Life with Down Syndrome and, most recently, Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters. He is a graduate of Duke University, Harvard Medical School, and Harvard’s John F. Kennedy School of Government. Brian recently authored major research on how physicians deliver a diagnosis of Down syndrome to new and expectant parents. He has been featured in The Wall Street Journal, The New York Times, The Washington Post, The L.A. Times, NPR’s On Point, and ABC’s Good Morning America. Brian serves on the Board of Directors for the Massachusetts Down Syndrome Congress, the National Down Syndrome Society, and Band of Angels Foundation. He further serves on the Professional Advisory Council to the National Down Syndrome Congress.

NADS Conference

2010-09-13T19:36:00.000-05:00

The agenda and registration for the NADS (Chicago) is now posted on the NADS web site. Alice Belgrade (the behaviorist who presented in Milwaukee in spring), Dennis McGuire and Brian Chicoine (who will be in Milwaukee in October 2011) will present. Info on toilet training and more...

This conference happens just over the border in Illinois every other year. If you've never been to a large conference, this is a relatively inexpensive way to gather good information, fairly close to home.

Sponsor a Sign

2010-09-11T15:11:00.000-05:00

The Down Syndrome Awareness Walk in Neenah on October 2nd is giving families a unique opportunity to sponsor a sign that will be placed along the walk route.

These signs will display facts about Down syndrome such as "Down syndrome is the most commonly occurring chromosomal condition, and one in every 733 babies is born with Down syndrome." The signs will also clarify common myths about Down syndrome such as "Adults with Down syndrome are unemployable, or people with Down syndrome have a short life span."

If you, your family or your walk team would like to sponsor one of these signs, please email me at melbaeten@hotmail.com. In the email, please complete this phrase "Sponsored by _______________________________."

After sending the email, please send $20 (checks should be written out to DSAW) to:

DSAW-Fox Cities
P.O. Box 2232
Appleton, WI 54912

Sponsorships are due by Monday, September 13th, in order for their to be enough time to create and print the signs. The signs will be weather proof and used year after year!

Please consider taking this opportunity to spread awareness and educate others about Down syndrome.

Reminder: Pre-register for the walk!

2010-09-11T08:44:00.000-05:00

There are only 9 days left to pre-register for the 2010 Down Syndrome Awareness Walk at Riverside Park in Neenah!

If you know people who have not yet registered, please remind them that they will not be guaranteed a t-shirt if they register after Monday, September 20th!! We WILL continue to take online registration after September 20th as well as new registration at the walk. Registration is only $5 per person.

Also, if you are interested in collecting offline donations, go to dsawfoxcities.org to print off a pledge sheet. Go to Awareness Walk then Registration. Supporters write checks out to DSAW-Fox Cities and you can send them to DSAW-Fox Cities, P.O. Box 2232 Appleton, WI 54912.

ALL donations must be received by September 30th in order to counted towards Top Fundraiser prizes. There will be awards for the top 10 individual fundraisers.

An award will also be given to the largest team, but all team members must be registered by September 30th.

The walk is really getting close!!

UHC Medical Grants

2010-09-09T10:26:00.003-05:00

via email:

We are writing today to see if you might be able to assist us. Our charity, the United Healthcare Children's Foundation, provides medical grants to eligible children across the US ...

Our sole intent is simply to let families know about our medical grants. You can learn more about us and the kids we help here: http://www.uhccf.org

Arc Presentation - Protected Tomorrows

2010-09-09T08:51:00.000-05:00

Protected Tomorrows

September 16, 2010

6:30pm - 8:00pm

Prince of Peace Lutheran Church

2330 E. Calumet St, Appleton

(near East High School)

presented by
Christine Rondeau and Sue Prince, Licensed Advocates of Protected Tomorrows

The goal of this presentation is to give family members the basics of creating a Future Care Plan for their loved ones with special needs and addressing some of their most important questions. We will cover Potential Funding Sources, Legal Options, the Importance of Choosing Future Care People,Transition Planning and Family Communication. Our mission is to help families plan a safe and fulfilling life for their family members with special needs.

Christine Rondeau and Sue Prince will use their personal experiences and professional skills to help the families they work with plan for the future. In presenting, they will assist you through "Your Journey Through an Eight Step Special Needs Planning Program.”

Please Register by Sept 15, 2010 to: Lisa Murphy (920) 725-0943 X 111

Visit the Arc at their website: www.arcfoxcities.com

Child care is available upon request. To register for childcare, you must register by Sept 9. In the event that child care must be cancelled, please call The Arc by Sept 15th.

New Library Book

2010-09-09T07:33:00.000-05:00

Appleton Public Library has one of Woodbine House’s newest publications, Sept. 2010:

The Guide to Good Health for Teens and Adults with Down Syndrome
Brian Chicoine, M.D. and Dennis McGuire, Ph.D.

Parents as Leaders

2010-09-08T14:17:00.000-05:00

Via email:

Greetings from the Parents as Leaders (PALs) program!

We are currently recruiting families for the 2010-11 PALs Program! Please share this information with colleagues and families.

The PALS program is designed for parents/caregivers with a child six or under with special needs who:

• are ready to become leaders and advocates in their communities;
• want to learn more about resources for children with special needs;
• want to meet some of the key leaders who make the policies and run the programs that affect children with special needs and their families in Wisconsin; and
• are interested in meeting other parents from around the state.

The PALs program meets four weekends over the course of nine months, from Friday afternoons (4 pm) until Saturday afternoons (4 pm). The program meets in Green Lake, Wisconsin and there is no cost for families (lodging and food are provided).

Please feel free to check out our website.

2010-2011 PALs Brochure.

This program is offered by the Parent Projects of the Wisconsin Personnel Development Project at Waisman Center at the University of Wisconsin-Madison, and is funded through the Wisconsin Department of Health Services, Birth to 3 Program.

If you have questions, please call Lynn H at (608) 263-5947 or Elizabeth W at (609) 265-9423 or 1-800-532-3321. Thanks for your interest in the PALs Program.

Fellowship Night

2010-09-08T06:45:00.000-05:00

Friendship Night

Every Wednesday 6:30-8:00pm (September-May)

Covenant Church

1601 Covenant Lane, Appleton

Easy access off Hwy 441; on Rail Road (between Kensington Drive and John Street)

Established March 2006

A non-denominational Christian fellowship for all ages of friends with cognitive impairments

Join us for arts & crafts, snacks, bible study (appropriate for all ages), singing, music, videos, conversation, support and encouragement!

Contact Scott or Maria for more information.

Their personal story: When Hendrik was born in 2004 with Down syndrome, he became the first individual in our church congregation with a visible disability. His church family began asking questions about Down syndrome, and later, when Hendrik was baptized, they started asking how they could fulfill their congregational commitment to Hendrik and his family.

This increased disability awareness resulted in a church adult education class being presented
on the topics of Down syndrome and inclusion of individuals with disabilities in the church
congregation. We even received a personal visit from Ralph & Carol Honderd, from the national
Friendship Ministries. From that came the vision to start our own local Friendship Ministries group! Our program uses curriculum from Friendship Ministries and is hosted by Hendrik’s parents and other church volunteers. For more information on F.M. visit their website.

Friendship Ministries Mission Statement: Sharing God’s love with people who have cognitive
impairments, enabling them to become an active part of God’s family in the context of personal and meaningful relationships with friends and mentors.

We’d love it if you or your loved one would join us on Wednesday nights!

Art Exhibit

2010-09-07T11:23:00.000-05:00

Local teen, Torin W., was chosen as one of 10 Wisconsin artists to be added to Creative Power: VSA Wisconsin’s Traveling Exhibition. This exhibit is a collection of 30 award-winning works of art by Wisconsin artists with disabilities. Torin’s 2010 Youth Award was received for his watercolor on paper, Sunflowers. It is listed at the bottom of page 4 of this program.

The exhibit is at Menasha Public Library until September 24. On Sept. 16, there will be a special event with artist talk, public reception, & performance by the VSA choir of Appleton. See link for further details.

Circles of Life Conference 2011

2010-09-01T22:08:00.000-05:00

The Circles of Life Conference is looking for presenters for their 2011 conference. Information and application forms can be found in the links below.

Call for papers 2011 Circles of Life

Checklist for Call for Papers Circles of Life 2011

Information and instructions for call for papers Circles of Life 2011

September Events

2010-08-30T07:46:00.003-05:00

Mark your calendar for these upcoming events! We hope you can join us - these events are fun and informal, and your entire family is invited to attend!

Upcoming Events for September:

Mom's Night Out at 6:30pm, Solea Mexican Restaurant, 705 Appleton Rd, Menasha

Thursday, September 2, 6:30PM; RSVP to Michelle.

2nd Saturday Gathering at Mom & Pop Place:

Saturday, September 11, 10:00 AM -12:00 Noon - a family-friendly cafe; The Mom & Pop Place is located at 117 W. Wisconsin, downtown Neenah

DADS meeting at Stone Toad Bar & Grill

Tuesday, August 17, 6:30pm - Stone Toad Bar & Grill is on South Oneida St in Menasha, between Hwy 441 and Hwy 114. RSVP to Jeff Brownell

4th Friday Park Playdate:

Friday, September 24, 9:00 AM -11:00

Please let me know if you need more directions! Park playdates are very informal – if the weather is bad, it’s up to you if you’d like to go or not.

Don't forget to check out October's Events - Our First Annual Down Syndrome Awareness Walk will be held on October 2nd, and Rachel Coleman will give a presentation for parents on the evening of October 1st!

2010 Celebrating Abilities Award

2010-08-26T09:52:00.002-05:00

Do you know someone in our community who enhances the way people with disabilities develop and celebrate their abilities? If so, please consider nominating them for the 2010 Celebrating Abilities Award. The nomination form is attached (thanks to Mary Willems the forms can be submitted electronically much easier this year). Completed forms should be submitted by Monday, September 20.

Please share the nomination form with your mailing lists to help get the word out about this award opportunity. It is a great chance to honor those who are celebrating abilities every day! If you have questions please contact Jill Gretzinger (832-0344) or Kara Van Vooren (969-5325.)

DS Car Magnets

2010-08-24T11:35:00.000-05:00

One of the items we'll be selling at the walk are these Down syndrome awareness car magnets!

We will be selling these for $5.00 each, and the small proceed will go to DSAW-Fox Cities fundraising efforts. Funds are currently used for new parent packs and walk expenses.

If you'd like to purchase one (or more!) prior to the walk, please contact Michelle.

Brain Imaging Study for Adults with Down Syndrome

2010-08-19T22:46:00.000-05:00

The Waisman Center is seeking adults with Down syndrome, ages 30 and above, for a research study involving an MRI and a PET scan to examine amyloid plaque in the brains of these individuals. Researcher Brad Christian, PhD, will look at the link between amyloid plaques and Down syndrome. Individuals with Down syndrome have an extra 21st chromosome, which contains the gene that makes these proteins and could lead to earlier development of Alzheimer’s disease.

The study takes two days, with the first day spent reviewing the procedures, completing a caregiver questionnaire, and neuropsychological testing for the individual with Down syndrome. On the second day brain imaging studies are performed, including an MRI that takes 30 minutes and a PET scan that takes an hour. There will also be a blood draw. You can watch a video that shows the imaging procedures on the following link: www.waisman.wisc.edu/amyloid.

Participants will receive compensation for time and expenses. There are some funds available for families who live a few hours from the Waisman Center to travel to Madison and have an overnight stay to allow the two study visits to be on consecutive days.

Please call Renee Makuch at (608) 262-4717 or toll-free at 1-877-558-7595 for additional information. The Waisman Center is located at the University of Wisconsin-Madison, and this study is being conducted in collaboration with the University of Pittsburgh Medical Center and the Down Syndrome Center at Children’s Hospital of Pittsburgh.

Buckets Needed

2010-08-17T10:56:00.000-05:00

We are searching for ice cream buckets for use at the DSAW Fox Cities walk as part of our bucket raffle.

If you have an ice cream bucket you can drop off or bring to a playdate prior to September 21, please contact Michelle, as I am the one collecting them. Thanks!

Please Register!

2010-08-16T08:05:00.001-05:00

If you plan on registering for the walk, please do so soon!

Pre-registration ends on September 20th, and participants are not guaranteed t-shirts for registration received after September 20th. (Remaining shirts will be distributed at the walk on a first come first served basis.)

*All donations must to be received by September 25th to be eligible for top fundraiser awards.

CLICK HERE TO REGISTER ONLINE or to download a registration form.

CYSHCN Lending Library

2010-08-05T09:01:00.000-05:00

Northeast Regional Center Children & Youth with Special Health Care Needs (CYSHCN) has a lending library, and here’s the link to their new online library.

Note all the great resources on the topic of Down syndrome! What a great resource!

August Events

2010-08-04T09:59:00.001-05:00

Mark your calendar for these upcoming events! We hope you can join us - these events are fun and informal, and your entire family is invited to attend!

Upcoming Events for August:

2nd Saturday Gathering at Mom & Pop Place:

Saturday, August 14, 10:00 AM -12:00 Noon - a family-friendly cafe
The Mom & Pop Place is located at 117 W. Wisconsin, downtown Neenah.

DADS inaugural meeting @ Stone Toad Bar & Grill

Tuesday, August 17, 6:30pm
Stone Toad Bar & Grill is on South Oneida St in Menasha, between Hwy 441 and Hwy 114. RSVP to Jeff Brownell

Down Syndrome Advocacy, Support & Networking

Thursday, August 26, 7:00pm, at the home of DSAW-Fox Cities parents Jeff & Jennifer Brownell; to RSVP & for directions, email Jennifer Brownell

4th Friday Park Playdate:

Friday, August 27, 9:00 AM -11:00
Derks Park, on Kensington by Target (Right off of Hwy 441, the KK/Calumet exit)

Please let me know if you need more directions! Park playdates are very informal – if the weather is bad, it’s up to you if you’d like to go or not.

Save the Date!

2010-07-29T13:18:00.002-05:00

Children's Parade - July 28!

2010-07-23T07:58:00.002-05:00

New Library Book

2010-07-21T13:10:00.002-05:00

Menasha Public Library has added a new book to their collection, not specific to topic of Down syndrome, but one of the newest resources available from Woodbine House:

“Power to Spring Up: postsecondary education opportunities for students with significant disabilities” Diana M Katovitch

Online Webinars

2010-07-21T13:09:00.001-05:00

The Allen C. Crocker Lecture Series is designed for parents and families members seeking quality information from experts on a range of topics related to Down syndrome. These lectures, honoring the legacy of Dr. Crocker, can be viewed, for free, from the links in the table on this page.

Our next talk will be simulcast live online on July 26, 2010 from 7:00pm - 8:30pm.
Our featured speaker will be Kathryn Brown, MS, RD, LDN who will present on "Nutrition and Down Syndrome"

UPCOMING TALKS:
August 23, 2010 - What Your Other Children Are Thinking: Sibling Issues presented by Brian Skotko, MD, MPP and Sue Levine, MA, CSW
September 27, 2010 - Obstructive Sleep Apnea in DS presented by Dennis Rosen, MD
October 25, 2010 - Toilet Training and DS presented by Kimberly Dunn, PNP
November 15, 2010 - Down Syndrome presented by Allen C. Crocker, MD
December 13, 2010 - Behavior and Down Syndrome presented by David Stein, PsyD

July Events - UPDATED!

2010-07-19T08:10:00.000-05:00

Mark your calendar for these upcoming events! We hope you can join us - these events are fun and informal, and your entire family is invited to attend!

Upcoming Playgroups for July:

2nd Saturday Gathering at Mom & Pop Place:

Saturday, July 10, 10:00 AM -12:00 Noon - a family-friendly cafe

The Mom & Pop Place is located at 117 W. Wisconsin, downtown Neenah.

4th Friday Park Playdate:

Friday, July 23, 9:00 AM -11:00

Please let me know if you need more directions! Park playdates are very informal – if the weather is bad, it’s up to you if you’d like to go or not.

The Building for Kids Children’s Parade

Wed. July 28, 5:15pm line-up, 6pm parade, Downtown College Avenue - wear yellow & blue

Down Syndrome Advocacy, Support and Networking Meeting

Thurs. July 29, 7:00 PM, at the home of DSAW-Fox Cities parents Jeff & Jennifer Brownell

Appleton Special Needs Parent Group

2010-06-25T13:11:00.001-05:00

The Appleton Special Needs Parent Group will have a meeting at the Thompson Community Center (820 W. College Ave., Appleton) on Thursday, July 8th at 7pm.

This will be their second meeting and they are hoping many new families will attend and share their concerns as well as positive stories about their child's educational experience. At their last meeting they discussed what they would like to see come out of the group:

Support for struggles at school and home
Advocacy
Information about school programs
Keeping IEP’s individualized
Transition to adulthood and what the school and community can offer including vocation, recreation and housing
Seclusion and Restraint used in schools
Inclusion and Least Restrictive Environment
Sharing positive experiences and what aids, services and accommodations have helped our children.
Finding parents who have adult children in our community and learning about the successes (and struggles) they have had in securing employment, housing and recreation options.
Positive change

Please pass on this information to parents of special needs children in the Appleton area.

(This is not a DSAW event)

Marcus Theatres Reel Movies for Reel Needs

2010-06-25T13:08:00.000-05:00

The Green Bay theater is involved in this project. Please visit their website for more information.

A SPECIAL SHOWING FOR FAMILIES AND INDIVIDUALS WITH SPECIAL NEEDS

SERVING A REAL NEED WITH A REEL EXPERIENCE
We understand that sometimes it is difficult or uncomfortable for families with special needs children to attend movies together. Marcus Theatres Reel Movies for Reel Needs is a specially designed program to serve families with special needs such as autism or other challenges, who seldom attend movies.

A COMFORTABLE ENVIRONMENT
Reel Movies for Real Needs creates a welcoming and comfortable environment - lower sound, lights up - where families with children who need accommodations will be able to share the experience of seeing family friendly films at a theatre.

AN OPPORTUNITY TO SHARE THE MOVIE EXPERIENCE
Reel Movies for Real Needs is ideal for families who may not feel comfortable attending regularly scheduled shows.

A select first run movie is featured one Saturday each month at a convenient 10:30AM showtime.

Walk Registration

2010-06-09T07:49:00.000-05:00

The 1st Annual Down Syndrome Awareness Walk Online Registration is Now Open!
Riverside Park, Neenah | Saturday, October 2nd 2010

No, it's not too early to register! Register, make your team and start fundraising!!

5 Steps to Start Fundraising for the Awareness Walk:
1) Click "Get Started" at www.firstgiving.com/dsawfc and register for our event.
2) While registering either join a team or create one.
3) Then, make your fundraising page (as instructed on the site after you register).
4) Encourage everyone you know to join your team when they register AND then tell them to make their own fundraising pages to raise money for your team.
5) They then send their page link to everyone they know asking for their support.

Now you and your entire team of walkers are out fundraising for your team!! If someone you know can't walk at the event, they simply visit your page and make a pledge.

Brochures, with pledge sheets, will be available online or by mail on July 1st.

Hope to see you all along with your friends and families on October 2nd!!

Video: Andy & Beth

2010-05-20T02:51:00.000-05:00

The Arc Fox Cities has for sale copies of the Andy & Beth video (on VHS for $16 or DVD for $19), the story of an Appleton couple with developmental disabilities who were married in 1997. Andy has Down syndrome.

It's available on the Arc Fox Cities website; find the Andy & Beth video information and order form about halfway down the home page.

Scholarship opportunity

2010-05-18T07:27:00.000-05:00

2010 JOSHUA O'NEILL & ZESHAN TABANI ENRICHMENT FUND

This fund offers financial assistance to young adults with Down syndrome who want to enroll in postsecondary programs or take classes that will help them with employment, independent living and life skills. To date, over thirty students have received grants from the National Down Syndrome Society (NDSS) to help cover the costs of pursuing their postsecondary education and enrichment goals. More information is available at http://www.ndss.org/

APPLICATION DEADLINE: JULY 16, 2010

YIPPE

2010-05-11T23:07:00.000-05:00

The Youth in Partnership with Parents for Empowerment (Yippe) program is now taking registrations for next school year's program. This parent and youth leadership program is open to youth with disabilities ages 15-20 and their parents. BOTH youth and parents must commit to attend all five sessions,which begin in September and end in April and are located in Wisconsin Dells, and must commit to a community action plan (adults) or individual action plan (youth.)

The training includes info on futures planning, self-determination and self-direction, employment and employment supports, post-secondary options, living options, adult service systems, sexuality and relationship info, and more.

The program provides all materials and overnight accommodations FREE of charge in return for parent/youth commitment to attend and share info back in their home communities.

The program has both a parent and a youth track. Families from around the state are encouraged to register. Please share this info widely with families, youth, and agencies that support families and youth.

September 24-25, 2010

November 19-20, 2010

January 28-29, 2011

March 11-12, 2011

April 15-16, 2011

Wintergreen Resort & Conference Center

Wisconsin Dells, WI

For more information, please email Martha. To register, please email Brenda.

Happy Mother's Day!

2010-05-08T22:57:00.001-05:00

We had a great turn out at our Mom & Pop Playdate - and we even managed a picture with most of the moms who were able to make it!

Happy Mother's Day!

Art Exhibit

2010-05-07T09:04:00.000-05:00

Michael J Johnson, is an artist with Down syndrome who supports himself by selling his art. His work will be on display in Hartland, WI from this Saturday till the beginning of June, sponsored by Wisconsin Upside Down. Come to see his art or purchase something for your home. Michael's work will be featured during Hartland's Gallery night on March 13th. Check it out at Lake Country Fine Arts.

His art will also be on display at other businesses in Hartland this month. Michael is a friend of Wisconsin Upside Down and he has donated a framed piece for their Buddy Walk to be held in Kenosha on September 11 this year!

Sports

2010-05-05T11:19:00.000-05:00

Special Olympics (the youth section) are running "sports" tuesday and thursday afternoons at APPLETON NORTH HIGH SCHOOL from 4.45pm to 5.30pm, for four weeks in May. The first day was yesterday (May 4). There is no fee involved, just show up and fill out registration form. The next meeting is on this Thursday afternoon.

If you check this out, let us know how it was! I'm sure others would love to hear more details - what age children, which sports they're playing, etc.

Family Care Teleconference

2010-04-23T11:52:00.000-05:00

What: The Arc-Wisconsin will host a teleconference to provide listeners from around the state with the opportunity to share their thoughts and experiences related to Family Care. Following a brief explanation as to why this teleconference is being held, callers will be invited to share their thoughts and experiences with Family Care. This is an opportunity to both share and learn from others around the state.

Who: Anyone with an interest in Family Care is invited to participate. Other invited participants include legislators and their staff, Department of Health Services staff, managed care organization staff, providers, and others with an interest in Family Care.

When: Thursday, April 29, 2010 from 10:30 AM to Noon

Call Information: (800) 261-3225 (toll free), Use code: 9578264130 followed by #.

The call will be recorded to enable people that cannot make the call to listen at a later time. While the call is scheduled for 90 minutes, people should feel free to join and/or leave the call at any time.

For more information: Contact Jim Hoegemeier at Arc-Wisconsin by email.

Resources for older students with DS

2010-04-22T14:18:00.000-05:00

Financial assistance is available to young adults with Down syndrome who want to enroll in post-secondary programs or take classes that will help them with employment, independent living and life skills. To date, over thirty students have received grants from the National Down Syndrome Society (NDSS) to help cover the costs of pursuing their post-secondary education and enrichment goals. The 2010 application form can be downloaded in PDF format. Application deadline is July 16, 2010.

_____________________________________

This opportunity would be well supported by the two newest books at the Appleton Public Library, which are as follows:

The Down Syndrome Transition Handbook: Charting Your Child’s Course to Adulthood
Jo Ann Simons, Woodbine House, 2010.

The Power to Spring Up: Postsecondary Education Opportunities for Students with Significant Disabilities
Diana Katovitch, Woodbine House, 2009.

Arc Presentation - Behavioral Interventions

2010-04-21T14:22:00.000-05:00

Behavioral Interventions

May 20, 2010

6:30pm - 8:00pm

Prince of Peace Lutheran Church

2330 E. Calumet St, Appleton

(near East High School)

presented by:

Joan Helbing

Why is my child behaving the way he is? What can I do? If you have felt this frustration, this presentation is for you. Come learn the whys and wherefores of behavior and share your concerns and expertise with others.

Upon registering, please take advantage of the opportunity to leave a question for the presenter.

Please Register by May 19, 2010 to: Lisa Murphy (920) 725-0943

Visit the Arc at their website: www.arcfoxcities.com

Child care is available upon request. To register for childcare, you must register by May 13th. In the event that child care must be cancelled, please call The Arc by May 18th.

Micah

2010-04-18T13:51:00.000-05:00

Our sweet little friend, Micah D., is in the hospital PICU and seriously ill. Please keep him and his family in your thoughts.

Updates should be posted to their blog as time allows.

Glee

2010-04-17T21:22:00.000-05:00

Last fall, a young actress appeared on the TV show Glee as a high school with Down syndrome - and she'll be returning for two more episodes! These episodes air April 20 & 27, so be sure not to miss them!

You can read an interview with the actress, Lauren Potter, online HERE.

New Library Books

2010-04-15T06:48:00.000-05:00

Two new books have been added to the collection at Appleton Public Library:

The Down Syndrome Transition Handbook: Charting Your Child’s Course to Adulthood
Jo Ann Simons, Woodbine House, 2010.

The Power to Spring Up: Postsecondary Education Opportunities for Students with Significant Disabilities
Diana Katovitch, Woodbine House, 2009.

One new book has been added to the collection at Menasha Public Library:

The Down Syndrome Transition Handbook: Charting Your Child’s Course to Adulthood
Jo Ann Simons, Woodbine House, 2010.

2010 DSAW Behavior Workshop

2010-04-01T14:21:00.002-05:00

FROM DEFIANCE TO COMPLIANCE:
Practical Answers to Difficult Behaviors in Kids with Down syndrome (and other special needs)
Presented By: Alice Belgrade, MS. Ed., BCBA

WHEN: Saturday, May 8th, 2010 ~ 9am—2pm

COST: *$25 ~ DSAW Members and $35 ~ Community (includes lunch and materials)
*A Limited Number of Scholarships are Available. Contact DSAW for details.

WHERE: Children’s Hospital of WI ~ Auditorium
9000 West Wisconsin Avenue, Wauwatosa, WI 53226

PARKING: Enter North Parking Structure; Follow Skywalk and Signs to Auditorium.

RSVP: By April 30th, 2010

ABOUT THE WORKSHOP:
In this workshop, practical, specific interventions that address the meaning of misbehavior will be presented.
Transitions, task completion and getting along with others can be challenging for children with Down syndrome, autism and other developmental disabilities. Video and case examples illustrate how to use positive strategies to encourage cooperation and learning. At the end of the workshop families will be able to:

Identify common causes and motivation for defiant behavior
Describe behavioral issues commonly seen in children with Down syndrome and identify effective and caring ways to manage them
Identify origins of stress and common behavioral responses exhibited by children
Share effective strategies for working with your child who has challenging behavior
Share real life examples of effective behavioral programming used with children who have Down syndrome and other disabilities

For more information or to reserve your spot, call DSAW, (414) 327-3729 or go to the website, and look in the Calendar of Events OR mail payment to: DSAW, 3211 South Lake Drive, Suite 113, St. Francis, WI 53235, Attn: Spring Behavior Workshop. Please make checks payable to DSAW. Please include name, address, phone number and email address for each attendee.

ABOUT THE PRESENTER:
Alice Belgrade, M.S. Ed, BCBA, from Chicago Behavioral Consultants is a Licensed Clinical Professional Counselor. Her experience spans more than twenty years in the fields of education and behavior analysis. She has provided individualized and classroom instruction to children and adults with a variety of disabilities, and has served as staff behavior analyst for community-based agencies. Her distinctive behavior management programs are characterized by a blend of sound behaviorist theory, practical and accessible techniques, and realistic goals. She is currently the Behavior Analyst for Community Unit School District # 95

Facebook

2010-03-31T23:36:00.001-05:00

Are you on Facebook? We are!
Click on the image above & join us!

April Events - UPDATED

2010-03-31T16:54:00.001-05:00

**Due to the beautiful weather - we are cancelling our Thursday playgroup & having a Friday park playdate instead!**

Mark your calendar for these upcoming events! We hope you can join us - these events are fun and informal, and your entire family is invited to attend!

Upcoming Playgroups for April:

2nd Saturday Gathering at Mom & Pop Place:

Saturday, April 10, 10:00 AM -12:00 Noon - a family-friendly cafe

The Mom & Pop Place is located at 117 W. Wisconsin, downtown Neenah.

4th Thursday Playgroup - CANCELLED!

4th Friday Park Playdate:

Friday, April 23, 9:00 AM -11:00

Derks Park, on Kensington by Target (Right off of Hwy 441, the KK/Calumet exit)

Moms Night Out:

Tuesday, April 13, 6:30 PM - Good Company (College & Richmond, Appleton); contact Michelle for more information or to RSVP.

Article Online - Florida Artist

2010-03-31T12:35:00.000-05:00

Florida Keys artist doesn't let Down syndrome stand in her way

A Florida Keys artist with Down syndrome runs her own small business selling vibrant watercolor paintings and scenic photography of the tropical island chain.

Read More

and visit Cinnamon's website.

Presentation

2010-03-31T12:29:00.001-05:00

Presentation on strategies for how to
read aloud to a young child.

Will include research that was recently completed on this topic.

Calumet County's Birth-3 Interagency Coordinating Council

Thursday, April 15th 2010

11:30-1:00 PM

New Hope Center

443 Manhattan Street

Chilton, WI 53014

Lunch will be available for $6.00

(Sandwiches, chips, soda and cookies)

Please RSVP by April 8th: Tanya Schmidt

Be sure to let her know if you are having lunch.

Mom's Night Out!

2010-03-29T20:52:00.001-05:00

Please join us for a Mom’s Night Out!

Tuesday, April 13
6:30 pm
Good Company - on the corner of College Ave & Richmond

Please RSVP so we know how many people to expect – even if you call the day of, that’d be fine! I hope you’ll consider joining us, even if you don’t know many (or any!) of the other moms.

Please contact Michelle if you need directions or have any other questions!